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Sacred DNA: Identity, Immortality, and the Human Genome Project


Student Report by Kiren Khan and Eugenia Ho


Dr. Susan Lindee, an assistant professor in the History of Sociology and Science Department here at the University of Pennsylvania, is mainly interested in the political and social contexts of twentieth century American biology that have shaped scientific ideas about the human body. She has co-authored a book with Dorothy Nelkin called _DNA Mystique: The Gene as a Cultural Icon_. Dr.Lindee has also written _Suffering Made Real: American Science and the Survivors of Hiroshima_ on post-war radiation genetics concentrating on the survivors of Hiroshima. She first became interested in this topic when she noticed the frequent and recurring image of the gene in popular culture.

During the lecture, Dr. Lindee asked the question, "How is the word gene used and what does it mean?" There are four ways to answer this question.

(1) The word gene appears immortal in popular sources
such as trash or mass culture.

(2) The word gene appears as an equivalent of a relic; it
makes present the people who have passed away.

(3) Genes are crucial in identity: defining an
individual, determining a criminal, or comparing people in relationships.

(4) Genes function as a boundary marker by determining

who you are through differences between self and not self. In summary, "the gene is a biological construct, a scientific concept, and a part of popular culture" -- it is a historical and cultural product pulling together the entire human race. A molecular geneticist is able to reconstitute a person using DNA from a gene just as God is able to reconstitute a person using his soul on the Last Day of Judgement. In either case, both molecular geneticists and God build the organism in order to immortalize it.

In order to illustrate the power of the gene in popular sources, Dr. Lindee cited the example _Jurassic Park_. In the movie scientists manipulated DNA to resurrect dinosaurs. Not only was the physical form of the dinosaurs resurrected, but their behavioral patterns and social constructs were reproduced as well. Because the dinosaurs followed their instincts, the project became uncontrollable. This proves that scientists do not have the authority to tamper with a force as powerful as the gene.

The gene is a relic in the sense that it can make saints present. For example, for decades scientists have wanted to extract DNA from President Lincoln's body to determine whether he had Marfan's syndrome and whether he suffered from manic depression. Indications of Marfan's syndrome are long extremities and weakness of the heart. People afflicted with Marfan's syndrome usually pass away from the bursting of the aorta. Some people believe that by reconstructing Lincoln through his DNA, his true fate can be discovered. In this case, the gene becomes "a molecular text in which immortal truths are written." Humans live for a few decades, whereas genes live forever.

From 1890 until 1930, a world-wide eugenics campaign attempted to solve the social problems of the world by improving breeding patterns of humans. By controlling human breeding patterns, eugenicists endeavored to manipulate individuals identities. Eugenicists of this time period believed that human life should not be wasted on those who were genetically unfit. Eugenicists thought that they could "improve the human race, not by power and coercion, but by freely exercised volition of those concerned."

In the 1950's, infertility technology made possible a more humane eugenics. Those involved with infertility technology appealed to people's needs for genetic connections through their offspring. They exploited the devastation experienced by infertile individuals by saying that it was important to have at least one child who would pass on the family genes and traits. The parents were led to believe that the suffering of infertile individuals was due to the breaking of the molecular bond between parent and child -- the fact that an family's genes are lost forever because of infertility. In a sense, a person's identity is lost forever when his DNA is not passed on to the next generation.

Genes serve as boundary markers because they show differences between a person and his surroundings. A popular science writer, Melvin Conner, wrote on the "erie" world of reunited twins. Since DNA is the key to one's identity, the twins displayed similar mannerisms even after years of separation. When individuals have similar DNA, the phenomenon shows "boundary blurring emotion" from the power of genes.

Another topic Dr. Lindee focused on was pre-determination. One belief in popular culture is that destiny is pre-determined at birth. In 1992, PBS aired a series called "Acts of a Serial Killer." One segment featured the "XYY Man" discovered by Patricia Jacobs, who believes that serial killers are inherently violent. She attributes the "XYY Man's" criminal behavior, aggression, and deviance to the extra Y chromosome. This claim was quickly integrated into the popular culture as illustrated by Donahue when he aired an episode called "XYY- Is Your Child a Serial Killer?"

Pre-determination is also claimed to have positive traits on a person. In the case of the current reigning chess champion, chess experts attribute the girl's talent to her parents DNA. However, her parents say that her chess-playing ability has to do with her being taught to play chess at an early age in their home environment.

The third topic Dr. Lindee centered on was the use of DNA by molecular biologists in the Human Genome Project (HGP) and the Human Diversity Project. In order to promote, publicize, and obtain funding, the HGP contends that its goal is to solve the ancient mystery of life and the problem to human existence; they state that DNA is a blueprint for humanity. James Watson claims that the HGP will solve the eternal question: "What does it mean to be human?" Proponents of the HGP assert that the mapping of the human genome will lead to the cures of illnesses and mental diseases. They strongly believe that the world's social problems, such as homelessness, alcoholism, laziness, etc., are a consequence of hereditary traits. By identifying the genes that portray these traits and by eliminating them, the genetic and social problems of the world will be resolved. Behind this political narrative and strategy is the HGP's underlying viability to biotechnological industry, especially international competition.

The goal of the Human Diversity Project is to reconstruct human history by collecting DNA from over 500 isolated groups around the world. It is problematic that humans no longer turn to archival texts but instead to DNA in order to reconstruct human history. By using DNA to understand humans (and their history), DNA becomes an "archival text similar to holy texts" which tell human history.

Dr. Lindee related DNA's importance to individuals and also to all of humanity by saying how genes are used in this day and age -- how they appear in popular culture, how they tell history, how they identify a person, and how they show differences among people. In addition, she spoke about other concerns DNA poses to humanity, such as pre-determination and its use in various projects. Humanity perpetuates the debate about destiny being pre-determined at birth. The debate has been going on for centuries and will continue for as long as humans live. Humans have also ventured to understand DNA by establishing the Human Genome Project and the Human Diversity Project. Both of these projects have been founded in an attempt to discover humanity's history and predict humanity's future.


OPINIONS FROM KIREN AND EUGENIA:

Kiren's Opinion --

The lecture Dr. Susan Lindee gave was very interesting and thought-provoking. In my opinion, Dr. Lindee described how humans are trying to be God-like by imitating Him. As she stated in the lecture, God resurrects humans through their souls on the Last Day of Judgement. Geneticists are trying to imitate Him by reconstructing humans that have passed away through the DNA in their genes.

I think that it is very egotistical and arrogant for humans to think that they can act like God. Even if geneticists someday are able to gather all the necessary DNA to build a human, I do not think he will be truly alive. He will just be a "guinea pig" for researchers.

There are many questions to be answered about this "human guinea pig." Whose genes will he inherit? Who will take care of him without treating him like a "guinea pig?" Who will take care of him if he has problems or defects? Who will be responsible for him if he has defects? Will he be put to death *humanely* if something goes wrong? Which human(s) have the power (and audacity) to decide his fate? How long before geneticists grow tired of their "human guinea pig?" What happens to him when geneticists do not want to deal with him anymore? Is he supposed to go away, disappear? Is he supposed to denature into the petri dish or test tube in which he was born?

All of these questions need to be answered along with thousands more that will appear along the way. Are humans ready to take on such a challenge, or risk, as I see it? Are we so full of ourselves to think that we can bring a life (from a petri dish or test tube) into this world, control it, decide its fate? I think such matters should be lift to God for only He knows humanity's fate.

Kiren Khan


Eugenia's Little Tidbit --

The opinions expressed in this piece belong solely to the author and do not necessarily reflect the view of my group partner, the professor, executors , administrators, trustees, their successors....you get the point ;-)

The belief that the gene is a blueprint to humanity is dangerous and fatalistic. The gene is not the key to solving the ancient mystery of life and the problem of human existence. There is always something that will remain a part of us that cannot be fully comprehended or analyzed such as the soul or our consciousness. In the 19th century, scientists believed that they could understand how humans think, feel, and dream by deciphering the intricacies of the neuron and the brain. Today, scientists know how neurons fire and how ion channels work. However, we are no closer to solving the enigma of human thought.

I have considered genetic engineering as a possible career. However, lately I have come to have serious doubts. I believe that scientists have a moral responsibility to society. They make the choice to do the research and what they discover influences industry, the public. For example, if there is flawed data on drug research, it could cost many lives.

We have come to believe that science is flawless and is a completely objective search for truth. It is, however, important to question science the way we do religion. Because the general public does not have a scientific background, they trust scientists for accurate information. A scientists perception and interpretation of the truth is very important and strongly influences society.

Scientists have advertised the importance and impact of the Human Genome Project in order to obtain funding from the government and support from industry. Once this knowledge is unleashed, it is no longer in the scientists hands to decide what is done with the knowledge. By the time the technology is unleashed, anything is possible. The possibility of having a genetic profile in my resumÈ and being evaluated not by my ability to perform the job well or my potential but by my faulty genes is frightening.

It is extremely important for me to have my own identity. I have spent most of life attempting to figure out who I am. It is an arrogant presumption for someone to think that they can possibly know who I am by analyzing my genetic profile is ridiculous. They cant possibly know me without understanding the life I have lived and the way my experiences and my environment have shaped my life.

After much self realization, I have come to terms with my genetic faults such as my hereditary bone disease. I am comfortable and proud of the person I have become Without all the experiences I have gone through because of my congenital disease, I would not be the same person I am today.

Just some thoughts to make you think the next time you read a journal, but a product, or support a scientific venture. It is vital to carefully consider the moral implicatons.


Thanks for listening,
Eugenia

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